LITTLE SNEŽANA (1) IS FIGHTING THE MOST IMPORTANT BATTLE: She is fed through a tube due to a rare syndrome – her deaf and mute parents are doing everything they can to save her life, let’s help them!

At just 16 months old, Snežana has barely fought for her life. Now she needs us.

Little Snežana from Zrenjanin is only 16 months old, yet she has already been through more than any child should have to endure.

She was born with Treacher Collins syndrome, a rare genetic condition that affects the development of the face, jaw, ears and airways. Due to serious breathing problems, she has spent much of her short life in hospital. At one point, her condition was so severe that doctors had to resuscitate her.

Snežana is finally home. But her battle does not end there.

Her parents are deaf and communicate using sign language, and today they are doing everything they can to provide their little girl with the care and conditions she needs.

Snežana still has a tracheostomy, is fed through a tube and requires a special diet, medical supplies, therapies and regular doctor visits. Because of Treacher Collins syndrome, she will continue to need check-ups and treatment, and there is a possibility that she will also need a special hearing aid, the cost of which can reach up to 10,000 euros.

For one family, all of this is an enormous burden. But they do not have to carry it alone.

Snežana has already fought for the most important thing – her life. Now she needs us.

Please, do not skip her story. Donate as much as you are able to and share this video. When many of us come together, we can provide Snežana with everything she needs today, as well as what she will need tomorrow.

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